This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post.
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Learn About the Disorder
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Living with MdDS
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Professional Resources
Faces of MdDS
Disability or Superpower?
It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do.
The Facts of MdDS
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It is typically triggered by motion: cars, trains, airplanes, ships, boats, and even fast elevators. -
The average person sees 20+ doctors before getting a diagnosis. -
Many people are suffering from MdDS and don’t know that they have it. They are undiagnosed. -
The scale of the problem is not matched by research dollars.
The MdDS phenomenon is the natural result of the human brain adapting to environmental motion and is thus the quintessential neurological disorder.
Yoon-Hee Cha, MD
The Latest from Our Blog
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Does MdDS have an ICD code?
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Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT
Construction of the MdDS Patient Registry, a global research study, is progressing at a steady pace. Like all qualified research, it has a Principal Investigator (PI) The PI is the person or people responsible for the research project. and an Institutional Review Board IRBs ensure that research is ethically acceptable, comply with regulations, and protects […]
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The MdDS Patient Registry Study Design
INTERNAL NOTES. Explaining the study flow, IRB, informed consent, and the role of advisory boards may ease participants’ worries. This article should address concerns about survey difficulty. The goal is to convert discomfort about the registry into excitement about it. The call-to-action block at the bottom will be determined by proximity of article publication date […]