This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post.
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Learn About the Disorder
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Living with MdDS
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Professional Resources
Faces of MdDS
Alone we are Rare. Together we are Strong.
There are over 10,000 rare disorders and diseases, the majority of which do not have a Patient Advocacy Organization (PAO) representing them! Read how the MdDS Foundation is advocating for you, today on the blog.
The Facts of MdDS
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It is typically triggered by motion: cars, trains, airplanes, ships, boats, and even fast elevators. -
The average person sees 20+ doctors before getting a diagnosis. -
Many people are suffering from MdDS and don’t know that they have it. They are undiagnosed. -
The scale of the problem is not matched by research dollars.
The MdDS phenomenon is the natural result of the human brain adapting to environmental motion and is thus the quintessential neurological disorder.
Yoon-Hee Cha, MD
The Latest from Our Blog
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Does MdDS have an ICD code?
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Alone we are Rare. Together we are Strong.
There are over 10,000 rare disorders and diseases, the majority of which do not have a Patient Advocacy Organization (PAO) representing them! Read how the MdDS Foundation is advocating for you, today on the blog.
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A Journey Through Uncharted Waters: My Life with MdDS
Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth.