Graphic Design student, traditional/digital artist, and animation lover, Desiree Meek created this series of paintings to illustrate her MdDS journey. From initial onset to her outlook more than 15 months later, from a place of darkness to one filled with hope, here is Lost at Sea.
Her post has received so many comments with words of encouragement and empathy, from people with other chronic conditions and invisible illnesses as well as fellow MdDS warriors. Find and connect with her on Instagram as drawingwithmeek.
Instagrammers, remember to tag mddsfoundation on your MdDS-related posts as Desiree did. When tagged, we can repost your content and increase the impact of your stories. With greater awareness comes the potential for more research, and eventually a cure. Together, we can achieve that goal!
Thank you. It has been 14 years of relentless swaying and being dizzy.
Now the neurologist says it’s pppd and not mdds but I’m sure he is right.
The swaying and dizziness stops when I’m in the car or swimming but the moment I stop it’s back with full vengeance.
Lisbeth, we hope your doctor is aware of the diagnostic criteria established by the the Barany Society. The following were published in the Journal of Vestibular Research, in 2020 and 2017 respectively. They help making differential diagnoses easier and more accurately.
Mal de débarquement syndrome diagnostic criteria: http://bit.ly/mddscriteria
Diagnostic criteria for persistent postural-perceptual dizziness (PPPD): https://bit.ly/pppdcriteria
The paintings and text brought me to tears as they portray my own emotions. Like you, Desiree, I am much improved some three years later. But I still miss my ‘old’ self. Thank you sharing your thoughts and feelings in this manner.
Thank you so much!! That means a lot to me 💖
Brilliant paintings Desiree! You have captured how it feels amazingly! I’m glad you feel better. Carry on painting! You’re extremely talented!