A Simple Way to Track Symptoms
The MdDS Foundation is thrilled to provide a printable and portable symptom severity scale. This user-friendly tool is designed to bridge the communication gap between patients and doctors, offering a clearer understanding of the varying levels of severity experienced by individuals with MdDS.
How Does the Scale Work?
It’s remarkably simple. You’ll measure your MdDS symptoms—the perception of motion in the absence of actual motion—on a scale from 1 (Very Mild) to 10 (Very Severe).
- At 1, symptoms are barely noticeable. You might feel a slight sense of motion but it doesn’t interfere with your day.
- At 5, the perceived motion may disrupt daily activities.
- At 10, symptoms are unbearable and severely impact quality of life.
And, yes, that 0 and remission is possible! Patients with zero perceived motion, sustained for at least six months, are considered in remission.
Why Symptom Tracking Helps You
Many people with MdDS feel isolated or misunderstood. However, tools like this severity scale can empower you. By consistently tracking your symptoms, you can:
- Identify patterns: Are your symptoms worse at certain times of day or after particular activities?
- Monitor changes: See how treatments or lifestyle adjustments affect your symptoms over time.
- Communicate effectively: Bring clear, measurable information to your doctor or therapist.
Sharing your findings with healthcare providers may help them have a better understanding of symptom variability and its impact on your daily life.
Beyond individual benefits, symptom tracking also aids research. The MdDS Foundation is dedicated to advancing research and finding treatments. To this end, you’ll be able to report your level numbers in the MdDS Patient Registry when it launches. Ultimately, consistent symptom monitoring may unveil a path towards better MdDS management. For now, please share your numbers with anyone who needs to see how the varying levels affect you. Help them understand that living with MdDS can be a different challenge every day.
Ready to Get Started? 🙂
🖨️ Download Your Copy: Right-click, ctrl+click or long press the scale above.
📬 Prefer a Physical Copy? Receive a free, professionally printed scale by mail! Simply complete this form. Provide your mailing address, and we’ll send the scale as a bookmark as soon as they’re printed. Hurry! Supplies are limited.