There are over 10,000 rare disorders and diseases, the majority of which do not have a Patient Advocacy Organization (PAO) representing them! Read how the MdDS Foundation is advocating for you, today on the blog.
Summit Recap: Over the course of the two-day event (actually 3 days, including pre-summit meetings), I met many other Patient Advocacy Organizations with shared challenges and successes.
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Our commitment to life-changing research continues with a scholarship announcement.
June 1, 2022 – In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are funding a Clinical Research Training Scholarship focused on MdDS. The award aims to recognize the importance of good clinical research and to encourage early career investigators in clinical studies in Mal […]
Effective research requires teamwork.Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been investigated […]
The following update is provided by Mingjia Dai, PhD., Mount Sinai School of Medicine.Oct. 30, 2014 — Since the publication on the study of the treatment for patients with MdDS, we have further explored VOR Readaptation for patients with classic MdDS (17 patients), spontaneous MdDS (no clear cause, 9 patients) and “MdDS” from head trauma (2 patients). The […]
Donation to Fund Vital Research into Mal de Debarquement SyndromeShannondell, PA – November 20, 2013 – The MdDS Balance Disorder Foundation is pleased to announce that it has received a $150,000 donation from Ellen Kaye to fund vital research into the cause of and a cure for Mal de Débarquement Syndrome. This donation, along with funds generated […]