INTERNAL NOTES. Explaining the study flow, IRB, informed consent, and the role of advisory boards may ease participants’ worries. This article should address concerns about survey difficulty. The goal is to convert discomfort about the registry into excitement about it. The call-to-action block at the bottom will be determined by proximity of article publication date […]
In spite of the variability, unpredictability and invisibility to others, Palm’s story contributes to the crucially important work of educating each other and the wider public about MdDS.
Thank you for having our backs and making a difference this year. GivingTuesday 2017 was the MdDS Foundation’s most successful one-day fundraiser ever with help from Facebook and the Gates Foundation. Due to the tremendous engagement and enthusiasm by the nonprofit community, the $2 million match limit was reached early and a total of $45 […]
“If something’s confusing, just ask for help.” That’s the rule in my house. It’s an aide for surviving MdDS. The only problem is, if your brain is foggy then you probably don’t realize you’re confused. That’s how it came to be that I left the car running in a parking lot and walked a couple blocks away […]
The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts.Click to view a sample: Letter for ProfessionalsThe […]
In the spirit of Giving Tuesday, the MdDS Balance Disorder Foundation would like to share some important news. Over the next year, the MdDS Foundation will be the beneficiary of a directed donation, in the amount of $100,000, with the sole purpose of increasing awareness of MdDS in the medical community and the general population. […]
The next $20,000 raised through our “Rocking Our Way to $40K” fundraiser is being matched by an anonymous donor. Incredible, we know. But wait, there’s more!
Through your shares and your kindness, our most important fundraiser of the year is off to a good start. Please help make it great and forward this email. Let your supporters know that Rocking Our Way to $40K is raising both funds and HOPE.